Opsoclonus-Myoclonus Syndrome

Important
It is possible that the main title of the report Opsoclonus-Myoclonus Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Myoclonic Encephalopathy, Kinsbourne Type
Opsoclonic Encephalopathy
Kinsbourne Syndrome
Dancing Eyes-Dancing Feet

Disorder Subdivisions

None

General Discussion

Opsoclonus-myoclonus syndrome is a rare movement disorder. It is characterized by associated ocular, behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and can become chronic.

Resources

Opsoclonus-Myoclonus Support Network, Inc.
4616 Brookwood St. NE
Albuquerque, NM 87109
USA
Tel: (505)881-2285
Email: sandragreenberg@hotmail.com
Internet: www.geocities.com/opso-myoclonus

National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda, MD 20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Email: braininfo@ninds.nih.gov
Internet: http://www.ninds.nih.gov/

National Pediatric Myoclonus Center
SIU School of Medicine
Dept. of Neurology, Div. of Ped. Neurology
PO Box 19643
Springfield, IL 62794-9643
USA
Tel: (217)545-7635
Fax: (217)545-1903
Email: oms@siumed.edu
Internet: http://www.omsusa.org

Dancing Eye Syndrome Support Trust
78 Quantock Road
Worthing
West Sussex, Intl BN13 2HQ
United Kingdom
Tel: 01903 532383
Fax: 01903 532383
Email: support@dancingeyes.org.uk
Internet: http://www.dancingeyes.org.uk

MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 4/5/2009
Copyright 1990, 1997, 2005, 2008, 2009 National Organization for Rare Disorders, Inc.

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