Self Help Clearinghouse
Death of a Child / Fetal Loss
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Compassionate Friends, The
National. Approximately 600 chapters. Founded 1969. Offers mutual support, friendship and understanding to families grieving the death of a child of any age, from any cause. Provides information on the grieving process, referrals to local chapter meetings and publishes quarterly magazine ($20/yr). Also has a sibling network.
Write:
Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522-3696
Voice: 1-877-969-0010
Fax: 630-990-0246
Website: http://www.compassionatefriends.org
E-mail: nationaloffice@compassionatefriends.org
Verified: 10/1/2008First Candle/SIDS Alliance
(BILINGUAL) National. 50 chapters. Founded 1987. Provides education, advocacy, research, support for families of babies who have died from SIDS (sudden infant death syndrome), stillbirth and miscarriages. Bilingual grief counselors available 24 hrs. Newsletter, conferences and chapter development guidelines.
Write:
First Candle/SIDS Alliance
1314 Bedford Ave., Suite 210
Baltimore, MD 21208
Voice: 1-800-221-7437 or 410-653-8226
Fax: 410-653-8709
Website: http://www.firstcandle.org
E-mail: info@firstcandle.org
Verified: 10/14/2008UNITE, Inc.
National. 12 groups. Founded 1975. Support for parents grieving a miscarriage, stillbirth or infant death. Also provides support for parents through subsequent pregnancies. Group meetings, phone help, newsletter, lending libraries and annual conference. Offers guidelines for starting and facilitating a group. Grief counselor training programs. Professionals in advisory roles.
Write:
UNITE, Inc.
P.O. Box 65
Drexel Hill, PA 19026
Voice: 1-888-488-6483 (tape)
Website: http://www.unitegriefsupport.org
E-mail: administrator@unitegriefsupport.org
Verified: 10/14/2008Parents of Murdered Children, Inc. (POMC)
National. Over 230 chapters in the U.S., Canada and Costa Rica. Founded 1978. Self-help support organization for families and friends of those who have died by violence. Newsletter 3 times a year. Court accompaniment also provided by many chapters. Parole Block Program and Second Opinion Service also available. Offers assistance in starting local chapters.
Write:
Parents of Murdered Children, Inc.
100 E. 8th St., Suite 202
Cincinnati, OH 45202
Voice: 1-888-818-7662 or 513-721-5683
Fax: 513-345-4489
Website: http://www.pomc.org
E-mail: natlpomc@aol.com
Verified: 10/21/2008AMEND (Aiding Mothers and Fathers Experiencing Neonatal Death)
National network. Founded 1974. Offers support and encouragement to parents having a normal grief reaction to the loss of their baby. Provides one-to-one peer counseling with trained volunteers.
Write:
AMEND
4324 Berrywick Terrace
St. Louis, MO 63128
Voice: 314-487-7582
Website: http://www.amendgroup.com
E-mail: martha@amendgroup.com or amendgroup@charter.net
Verified: 10/10/2008Share Pregnancy and Infant Loss Support, Inc.
National. 100 chapters. Founded 1977. Mutual support for bereaved parents and families whose lives have been touched by the tragic death of a baby through early pregnancy loss, stillbirth or in the first few months of life. Provides support toward positive resolution of grief experienced at the time of or following the death of a baby. Information, education and resources on the needs and rights of bereaved parents and siblings. Provides newsletter, information re: professionals and pastoral care. Chapter development guidelines. Online message board and weekly chatrooms.
Write:
St. Joseph's Health Center
402 Jackson St.
National Share Office
St. Charles, MO 63301
Voice: 1-800-821-6819 or 636-947-6164
Fax: 636-947-7486
Website: http://www.nationalshareoffice.com
E-mail: share@nationalshareoffice.com
Verified: 10/14/2008MyMolarPregnancy.com
Online. Founded 2001. Information, links, references and a number of interactive web features for women who have had a molar pregnancy. Support group, message board and chatroom.
Website: http://www.mymolarpregnancy.com
Verified: 10/17/2008CLIMB, Inc. (Center for Loss In Multiple Birth)
International network. Founded 1987. Support by and for parents who have experienced the death of one or more of their twins or higher multiples during pregnancy, birth, in infancy or childhood. Newsletter, information on specialized topics, pen pals and phone support.
Write:
Center for Loss In Multiple Birth
P.O. Box 91377
Anchorage, AK 99509
Voice: 907-222-5321
Website: http://www.climb-support.org
E-mail: climb@pobox.alaska.net
Verified: 10/1/2008Alive Alone, Inc.
National network. Founded 1988. Self-help network of parents who have lost an only child or all of their children. Provides education and publications to promote communication and healing, to assist in resolving grief and to develop means to reinvest lives for a positive future. Bimonthly newsletter.
Write:
Alive Alone, Inc.
1112 Champaign Dr.
c/o Kay Bevington
Van Wert, OH 45891
Website: http://www.alivealone.org
E-mail: alivalon@bright.net
Verified: 9/27/2008The Triplet Connection
Online. Founded 1983. Online support forum of parents who have lost one or more children in multiple births.
Write:
The Triplet Connection
P.O. Box 429
Spring City, UT 84662
Voice: 435-851-1105
Fax: 435-462-7466
Website: http://www.tripletconnection.org/triplet_forum/dcboard.php
E-mail: tc@tripletconnection.org
Verified: 10/16/2008Bereaved Parents of the USA
(BILINGUAL) National. 80+ affiliated groups. Founded 1995. Designed to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. Information and referrals, newsletter, phone support, conferences and support group meetings. Assistance and guidelines in starting groups.
Write:
Bereaved Parents of the USA
P.O. Box 95
Park Forest, IL 60466
Voice: 708-748-7866 (voice/fax)
Website: http://www.bereavedparentsusa.org
Verified: 10/1/2008AGAST
International. Founded 1989. Dedicated to supporting grandparents when a grandchild dies. Offers personal support, literature packet (information to help own child, siblings, etc.), provides online message board and newsletter. Telephone support and subject matter support available (one twin died, grandchild murdered, etc.). Helps with the development of new groups.
Write:
AGAST-MISS
P.O. Box 5333
Peoria, AZ 85385-5333
Voice: 1-888-774-7437 or 1-800-455-6477
Fax: 623-979-1001
Website: http://www.agast.org or http://www.missfoundation.org
E-mail: reachout@agast.org or info@missfoundation.org
Verified: 10/14/2008The M.I.S.S. Foundation
International. 20 affiliated groups. Founded 1995. Offers emergency and on-going support for families suffering from the loss a child. Provides information, referrals, phone support, newsletter, pen pals, literature, advocacy and online chatroom support. Information on local group development. Local support group listings online.
Write:
M.I.S.S. Foundation
P.O. Box 5333
Peoria, AZ 85385
Voice: 623-979-1000
Fax: 623-979-1001
Website: http://www.missfoundation.org
E-mail: joanne@missfoundation.org
Verified: 10/14/2008GRASP (Grief Recovery After Substance Passing)
National. 6 affilated groups. Founded 2002. Support and advocacy group for parents who have suffered the death of a child due to substance abuse. Provides opportunity for parents to share their grief and experiences without shame or recrimination. Provides information and suggestions for those wanting to start new chapters.
Write:
GRASP
62 Holly Ribbons Circle
c/o Patricia Wittberger
Bluffton, SC 29909
Voice: 843-705-2217
Website: http://www.grasphelp.com
E-mail: mom@jennysjourney.org
Verified: 10/16/2008A Heartbreaking Choice
Online. Resource for parents who have had to terminate a wanted pregnancy due to prenatal news such as birth defects or risk to the well-being of the mother. Listserv e-mail list, discussion forum and grandparents forum.
Website: http://www.aheartbreakingchoice.com
Verified: 9/25/2008Angels of Addiction
Online. 136 members. Founded 2005. Mutual support for bereaved parents who have lost a child of any age to drug overdose/use. Message board.
Website: http://health.groups.yahoo.com/group/angelsofaddiction/
Verified: 9/23/2008Parent Soup Message Boards
Online. Offers a large variety of message boards which deal with parenting issues including infertility, pregnancy, parenting challenges, parents of disabled, pregnancy loss, newborn babies, toddlers, adoption, family issues, etc.
Website: http://www.parentsoup.com/messageboards
Verified: 10/22/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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