Self Help Clearinghouse

Chromosome 22 Disorders

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

22q13 Family Discussion List

Online. 546 members. Founded 2000. Support for families whose children are affected by abnormalities involving the 22q13 region of the 22nd chromosome, including terminal and interstitial deletions, mutations and other problems which lead to Phelan-McDermid syndrome.
Website: http://health.groups.yahoo.com/group/22q13
Verified: 9/9/2008

Chromosome 22 Central

International network. Founded 1996. Networking and support for parents of children with any chromosome 22 disorder. Supports research. Offers literature, phone support, newsletter and e-mail support lists. Online bulletin boards.
Write:
Chromosome 22 Central
237 Kent Ave., Timmons, Ontario
Canada, P4N 3C3
Voice: 705-268-3099
Fax: 705-268-3099
Website: http://www.c22c.org
E-mail: a815@c22c.org
Verified: 10/8/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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