Self Help Clearinghouse

Odor (Body / Breath)

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Trimethylaminuria Support Group

Online. 759 members. Founded 2000. Mutual support via discussion forum for those affected by the metabolic disorder trimethyaminuria (also known as fish odor syndrome, fish malodor syndrome and stale fish syndrome). Trimethylaminuria is an inability of the body to break down trimethylamine, consequently trimethylamine accumulates in the body and is then released in a person's sweat, urine and breath, giving off a strong fishy odor.
Website: http://health.groups.yahoo.com/group/trimethylaminuria
Verified: 9/23/2008

NARA (Not A Rose Assoc.) / BOSS (Body Odor Support Service)

Model. 1 group in GA. Founded 1998. Mutual support for persons suffering from 'odorous' conditions of the body, breath or unknown sources. Offers coping skills.
Write:
NARA (Not A Rose Association)
1492 Baron Count
Stone Mountain, GA 30087
Voice: 770-279-0200 (for emergency after 7pm EST)
E-mail: annhenry99@yahoo.com
Verified: 9/30/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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